LONDON (Reuters) – The harvesting of genetic data from millions of women by a Chinese company through prenatal tests is concerning and Britain should debate how privacy can be protected from “surveillance autocracy”, a senior British lawmaker told Reuters.
A Reuters review of scientific papers and company statements found that BGI Group developed the tests in collaboration with the Chinese military and is using them to collect genetic data for sweeping research on the traits of populations.
“I’m always concerned when data leaves the United Kingdom, that it should be treated with the respect and privacy that we would expect here at home, and the concern that this raises is that it may not be so,” Tom Tugendhat, chairman of the British parliament’s Foreign Affairs Select Committee, told Reuters.
“The connections between Chinese genomics firms and the Chinese military do not align with what we would normally expect in the United Kingdom or indeed many other countries.”
BGI says it has never shared data for national security purposes and has never been asked to.
The company said that it fully complied with European GDPR data protection rules and also had the British certification for personal information management.
“BGI’s NIPT test was developed solely by BGI – not in partnership with China’s military. All NIPT data collected overseas are stored in BGI’s labs in Hong Kong and are destroyed after five years,” it said in an email to Reuters, adding that it took data protection, privacy and ethics extremely seriously.
Tugendhat is one of nine British lawmakers who has been sanctioned by China for highlighting alleged human rights abuses in Xinjiang, which Beijing describes as “lies and disinformation”.
He co-leads the China Research Group, a group of Conservative lawmakers which looks to rebalance the strategic relationship with China.
He said that any British companies using the tests should be clear where the data is going, who holds it, and what access others, including other governments, would have to it.
“Unless a company has done that, I think it’s perfectly reasonable for British people to be extremely concerned with these connections,” he said.